Six weeks ago, I started seeing an amazing new doctor who finally diagnosed this mystery illness that has made me so sick the last two years. He has begun weekly IV treatment along with a host of other alternative therapies that are finally starting to give me my life back after two years of countless ER visits, trips to the doctor and testing. The treatments are really helping. But, when I have to go more than a week between them, I start to feel really sick again, and some weeks I feel worse, before I feel better. I’ve gone from being in bed 80% of the time to about 20% of the time, though, so that alone is a miracle, especially when you have four children. I have decided to document my journey here to show the up’s and down’s of my healing journey, in hopes of offering an honest view into my world, as I fall and rise, yet again and again and again. Through my years as The Grim Reaper Girl, I have learned above all, that our struggles teach us as much as our triumphs, so I hope you can be inspired by my acceptance of all the parts of this journey, and myself in them.
Days like this are really, really hard for me. This healing journey comes with its up’s and down’s. (If you missed my updates on my recent diagnosis’ of serious chronic illness, go check my Facebook page). Right now, I have severe asthma and allergies on top of the chronic illness I’ve been suffering from for 2 years. I have a severe infection in my lungs and feel like I can’t breathe. I’ve been in bed since Sunday and this week I had to postpone my weekly IV treatment because it’s just too much for me to drive an hour and a half each way to the doctor, receive the treatment which really drains me, and then come home and have to take care of 4 kids alone for 3 days until my husband has a day off. Today I feel really horrible – bad anxiety (a side effect of my treatment), extreme fatigue, nausea, headache, heart palpitations, brain fog, chest pain, and a wicked cough. And I woke up this morning to find out my 3 year old who just got over a horrible case of the flu that almost turned to pneumonia a couple weeks ago, now has CROUP. Croup is what my nephew died from.
This shit is real, folks. I don’t make it up. It is absolutely ridiculous how often we are sick. It is absolutely unbearable feeling horrible myself and taking care of a toddler who feels awful – when he doesn’t feel good, he is mean and nasty and whiny and gets into trouble all day long. So, I should be in bed, but instead I’m pulling him off counters and shelves and candy cabinets all day long. Oh yeah, and there’s also a 16 month old to take care of and 2 other kids to take to and from school, and make sure they get their homework and chores done. Mamas don’t always get a day off. No matter how sick they are.
I’ve worked really hard to train myself to stay in FAITH instead of FEAR but days like today, I feel like I’m fighting an uphill battle ALL ALONE. My husband works 7-7 most days. I have paid a babysitter enough money to put her through college, to help me this last year and a half, but she has limited availability because she’s in school. So, today, I am just trying to be ok with not feeling great, and wishing I could feel super loved and supported when I’m feeling really alone and overwhelmed. Am I allowed to feel that? Am I allowed to have days where I kind of just can’t get to a place of positivity and faith and lots of words of inspiration while I try to heal?
Well, I’m the only one who can give myself permission to just be as I am. So, I hereby grant myself the inalienable right to just say, THIS SUCKS. THIS IS HARD RIGHT NOW. I know it will pass, but right now, it hurts and its hard and I would LOVE more than anything to feel your love around me right now.
Tomorrow I will probably be back to peppy-steppy-feelin’-and-believin’-Megan. Today, I am allowed to just be Megan. And maybe even, Shitty Megan. Or, at least, Shitty-Feeling Megan.
And I feel SO much better when I just express myself honestly to the world. Don’t you?!!!!!!!! I hope this inspires you to be honest about your struggles. When we give ourselves permission to be real, we give others permission to do the same, and the truth is, sometimes this being human is hard, isn’t it? Let’s not try to pretend any different. What makes it worth doing, is being in it together, and knowing there is as much beauty as pain.
Ahhhh…I feel more faith-filled already. I know this will pass, and I’m trusting some miracles are on their way…and I am so grateful I have this community of people around me to support me from near and far through this. Thanks for being here, thanks for listening. Remember, whatever you’re going through, you’re not alone. I’ve probably been there. I see you. I get you. We’re in it TOGETHER, and we even get to be SHITTY together if we want to.